Tuesday, May 20, 2014

PEG button change

Last Friday, K had her replacement of her PEG button in the Children Surgical Centre. The entire thing was over in about a minute.

I feel for K. They really yanked it out and popped in the new button.

I guess it was the way to go. But it done was really fast and clean. I guess it would have hurt for a longer time if you took the time to slowly twist and pull it out.

The area of the button was raw for few days, but expected.

This is the Bard after it was taken out. It's kind of our souvenir.

It was last October when we first had the button done for K. We had the Bard button put in for K at that time.

It was leaky after about 4 months. There was back flow, even 3-4 hours after last feeding. Since recommended time for change is about 6 months, we made an appointment to change the Bard out.

This time, we opted for the AMT Mini ONE Non Balloon.

The only thing about this AMT button is that it is slightly bulkier than the Bard. The Bard has a lower profile compared to the AMT when compared with both the continuous feeding tube inserted.

If you don't like the button/feeding tube combination to look like a small erm...button underneath the shirt, Bard would probably be the way to go.

Let's see how this model of AMT button goes.

Friday, May 2, 2014

Star pals engaged

Recently we engaged the services of star pals. They have a team of doctors, nurses and social workers who can carry out regular home visits of the patients to check on the well being, provide medical treatment or therapy services.

With their services we hope to stay out of the hospital as much as possible. Hospital stays drains the energy out of everyone.

So far they have done an initial and a follow up visits.  To get to know K and her condition, they ask lots of questions about K.

These questions are fine actually. But there are some questions that got me thinking like how's the rate of breathing without the BiPap compared to with it.

It struck me as I realized I haven't been noticing these details about K for quite sometime. Sad to say,we sort of pride ourself on having a mundane life. Because most likely any changes happening to K's health are areas for concern. As I always say to my friends who ask about K, no news is sometimes good news.

Having someone to come in and ask some questions occasionally is good. It serves as a reminder to be more attentive to details even in a lull or in good health.