Sunday, September 29, 2013

May power be bestow unto you

With K being dependent on machines to ensure as much of a quality lifestyle as possible, it has limited our activities in terms of time able to spend outside the house and activities. Then we also have to ensure her 20 hour feed per day. But that is another story for another day.

Where ever she goes, these machine follows. And these has a battery life.
  • BiPap Machine (2 Hrs)
  • Oximeter (5-7 Hrs)
  • Suction Machine (1 Hr)
  • Feeding Pump (10-15 Hrs)

Thursday, September 26, 2013

Marine Life Park Trip

It was a busy 3 days for Little K. We had an outing with MDAS on Saturday. Now Monday, was a trip to the fairly new Marine Life Park.

Why make K so busy? Well, one was the off day that daddy and mummy could take from work. The other was that as she is scheduled to have the PEG procedure done at end of October. It will probably take some time for K to settle down after the procedure. So we try to bring her out when she still can.

Tuesday, September 24, 2013

MDAS Out to Marina @ Keppel Bay

Saturday (21/09/2013) was a pretty sunny afternoon. Usually not a time when we would bring Kaelyn out for walk as she will complain because of the afternoon glare and heat. But anyway we are out because of MDAS invitation to Marina at Keppel Bay.

It's a place where daddy and mummy wanted to go have an afternoon off to eat brunch and see the boats but still haven't go yet. This time, they got the excuse to go there. So you could say that Kaelyn brings them to places.

When we arrived, we actually had Ms. Eunice Olsen at the drop off area to welcome the kids that came. She is the Ms Singapore Universe for the year 2000! And you can also say that Kaelyn also brings us out to rub shoulders with a celebrity.

Saturday, September 14, 2013

Friday, September 13, 2013

This girl wants matching bags

via Instagram

Kaelyn at the time of the photo was taken, already had a bath and was getting ready for her chest physio session. As she lay there in front of the dining table, she will use her sharp eyes to eyeball what ever that is on the table. If she wants to have her hands on and call out to us. If we let her, she would just touch and feel the texture and try to hold it if she could.

This morning, mummy's bag caught her eyes. Not a bad choice. Colour coordinated with her top. I say she might have an eye for fashion.

Monday, September 2, 2013

Pinnacle@duxton walk walk

It seems like a nice day to bring Kaelyn out for a walk. We had planned to bring her to the roof garden on the 50th level of the pinnacle @ duxton for a walk. There was a slight drizzle while on the way there, threatening to spoil the day. But thankfully it stopped and the ground was not wet (dried up pretty quick plus just a short while of drizzle only)

I think it's a good day for Kaelyn. She hasn't been outdoors as it rained during her park time in the late afternoon a few times in the week. And yesterday as she refused to take a nap, we didn't bring her out.

Her nap times are getting lesser. She gets tired but refuses to go to sleep in the late afternoon, and choosing the inopportune times to fall alseep, such as during her chest physio, which is about an hour and half away from her normal bed time. The thumping probably comforts her, even though she has been rejecting pat pats while bed time.

Also the past Sunday have made us worried as she vomited twice in a day last week.