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Thursday, October 31, 2013

Breathe in breathe out

This was the mantra I told K at home when she desat as she chokes on her secretion or gets angry and hold her breath. This was what I told her as I left her for the docs to extubate her. This is the 3rd day after her op. 

The curtains were drawn closed. It reopen 20 minutes later with K on her usual mask. Not only that, they already had done an intubation on the baby on the next bed. 

Monday, October 28, 2013

K's PEG and fundoplication procedure

K lies asleep peacefully, intubated and on painkillers after her PEG and fundoplication procedure as I am typing this beside her bed. She has her bedside buddies with her. All in good hands as you can see. 


Friday, October 11, 2013

Barium/contrast study

Early morning, we had to dig K from her sleep at around 7am. Thankfully she is a morning person. She has a jolly mood mostly when she woke up. We have an appointment for her barium meal/contrast study. This is done in anticipation of her Percutaneous endoscopic gastrostomy(PEG) procedure  2 weeks later. 

I didn't ask or read much for this study. But probably they want to have a look at how her stomach looks like and if there are any obstruction or exception they would expect.

The appointment was at 9am. Good that this is the 1st appointment. The previous VFSS we did, we had a hour and half wait. To hungry babies and kids, this is quite an eternity as you are not allowed to have food 3 or 4 hours before.

The bad is the morning rush hour traffic. But thankfully no exceptional bad traffic. 

K can really fuss for quite a while. Throughout the half hour under the scan and preparation time, she was fussing non stop. I hear this is good exercise for their lungs :p

We finished everything without much problem. Hopefully her upcoming PEG procedure will be like this too. 



Sunday, September 29, 2013

May power be bestow unto you

With K being dependent on machines to ensure as much of a quality lifestyle as possible, it has limited our activities in terms of time able to spend outside the house and activities. Then we also have to ensure her 20 hour feed per day. But that is another story for another day.

Where ever she goes, these machine follows. And these has a battery life.
  • BiPap Machine (2 Hrs)
  • Oximeter (5-7 Hrs)
  • Suction Machine (1 Hr)
  • Feeding Pump (10-15 Hrs)

Thursday, September 26, 2013

Marine Life Park Trip

It was a busy 3 days for Little K. We had an outing with MDAS on Saturday. Now Monday, was a trip to the fairly new Marine Life Park.

Why make K so busy? Well, one was the off day that daddy and mummy could take from work. The other was that as she is scheduled to have the PEG procedure done at end of October. It will probably take some time for K to settle down after the procedure. So we try to bring her out when she still can.

Tuesday, September 24, 2013

MDAS Out to Marina @ Keppel Bay

Saturday (21/09/2013) was a pretty sunny afternoon. Usually not a time when we would bring Kaelyn out for walk as she will complain because of the afternoon glare and heat. But anyway we are out because of MDAS invitation to Marina at Keppel Bay.

It's a place where daddy and mummy wanted to go have an afternoon off to eat brunch and see the boats but still haven't go yet. This time, they got the excuse to go there. So you could say that Kaelyn brings them to places.

When we arrived, we actually had Ms. Eunice Olsen at the drop off area to welcome the kids that came. She is the Ms Singapore Universe for the year 2000! And you can also say that Kaelyn also brings us out to rub shoulders with a celebrity.